Happy 4th

 So, some time ago I promised to put up a pic of my bald ass head and my Cyborg Port.  I guess I forgot about that.  Being a man of my word, here you go.  Note, the eyebrows are almost gone.  Not too happy about that.  Everything else is fine by me.  No hair to mess with, no nose hair to keep trimmed and shaving is about a once every 8-10 day affair.  I'm enjoying the bald thing so much, I may keep that style for a bit after all this is said and done.  Melissa says it makes me look "tough". 

Sorry it has been so long since the last post.  I am not trying to keep anyone out of the loop.  There has just not been much to report since my last bit of news.  Mostly, I have been both bored and frustrated.  Bored from not being able to get out much, and frustrated from not being able to last long when I do have the motivation to do anything.   For example, one of the most important things to me is my job.  By the time I get up, get ready and drive to the office, I've got about 1.5-2 hours of good cognitive time.  After that, the tiredness sets in.  I'm better off just working from home- which is what I am mostly doing.   I'm so excited to get this transplant done and get back to it!!!!

I still have time off until my date with Ms Bisulfan (high dose chemo), but not time off from the grind.  Monday, I will be getting a PET scan.  This time, it is only of my head and neck.  Previously, it had been full body.  I am assuming this is because the doc is confident everything in my chest has cleared and there was just one last spot in my neck from last time.  Hopefully, this scan will show good response.  I am expecting it will.   I also have a bone marrow biopsy on Thursday of next week I believe. This is just standard protocol for pre-transplant tests.  I have had no prior bone marrow infestation, so I expect this will be fine as well.  I also have a BMT education day in the clinic as well.  This is to tell us what to expect, what I can and can't be exposed to, etc.  I'll keep this site updated as things progress.  In the meantime, I am going to enjoy my holiday.  M & I have driven up to TN to go to a friend's family BBQ.  I believe they put a pig in the ground.  Should be awesome.  Cheers!

PS: Another pic below of the Cyborg Port.  It should be clear, but the white tube goes under my skin like a splinter.  It is threaded up to my collar bone, where it goes over the bone, and then dips behind it and into my jugular vein.  This is why most of what I do for working out is a no-no.  Not because of the way I feel, but because this thing can be dislodged- and I guess I could bleed out or something.  Not sure what happens.  I'm not gonna find out. 

Comments

[Fenella]

Hey Jeff...thinking of you and Melissa, your spririt is truly inspiring! Good luck on Monday and thanks for keeping us updated with this blog. xoxoxo, Fenella.

[Justin]

Hey Jeff! Hope you're feeling well. The ports kind of look like something from the Matrix - when they uploaded special skills and knowledge. You're looking good!

[Paige Philyaw-Limbo]

Hope you had a great 4th and a good pig roasting! Please keep me updated with your results this week. You are my office's inspiration for our Light the Night fundraisers we have going on. Stay strong! Paige

[Paige]

Hey Jeff, just wanted you to know that I'm thinking about you and Melissa. Justin is right. You do look great. We're all here for you.

[Chris Alberts]

Jeff aka Neo-
You are a beast!
Just wanted to check in and hear the latest. Trust you're getting finely tuned by Greg - keep it up!
Look forward to seeing you.
Mahalo. Chris

[Teresa Cowper]

Jeff & Melissa: Stay tough, stay strong!

Jeff: You look like Robert Downey in the IRONMAN movie!!!!

Love you guys, TC

[Laura]

I love you Jeff!!
Hope to see you soon... xo-Laura

[Calandra]

Jeff,

You are tough. I admire how strong you've been dude.

Calandra